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KORA'S HEART JOURNEY

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Update - January 15 2026

This update is a bit different. We got our call for Kora’s surgery which was to be January 28th. Unfortunately, she had just come down with the stomach flu so our team had to discuss with Edmonton if the surgery could go forward as planned or get postponed. Our nurse touched base with me today to let me know surgery will be postponed a bit to ensure we are all healthy for the best possible outcome. They have openings still for early February so it looks like it will be happen

January 11th Update - Still waiting!

I figured I’d post a quick update as a lot of people are asking if we have gotten our call yet. We are still waiting on word when Kora will be scheduled for surgery. With her being listed as elective, things can get pushed around with her approximate time frame. So we are just trying to enjoy each day as much as we can! We are prepared to receive our call at any time but trying not to pause living life until then! I will send out an update again once we have received our call

Newest update - December 21, 2025

I would like to apologize for not updating on here for a very long time. Life has gotten consistently busier and I have been struggling to find time to sit an update all of our pages regarding everything with Kora. Kora turned 3 in August, became a big sister to a little sister in July and has been thriving since surgery! Everything has been fairly status quo since her last surgery so there really hasn’t been much updates for her, until now. Last month (November 2025) we went

Homeward Bound!!

Update : we are discharged and heading home tomorrow after only 3 days in the recovery ward! April 4: Wow what a great past couple days!...

Update #6 March 29-April 1

Kora has been doing so well! Here are the updates by day: March 29: We got our first smile and giggle from Kora since one week ago ❤️ she...

Update #5 March 27-28

Two steps forward, one step back. This has seemed to describe the past few days. Kora had a great day yesterday, we even got to hold her...

Update #4

Kora seems to have stabilized overnight again. They are doing things extremely slowly when weaning her off of things now after...

Update #3 (March 25th)

The 25th was our worst day so far. Kora has had a few spells where her oxygen has plummeted to 30-50%. It got low enough that she was...

Update #2

I am a bit behind on updates for sweet Kora. We have had lots of up's and downs the past 2 days. It looks like we will be remaining in...

Update!

Kora has woken up and been extubated! She is showing lots of improvement and they are hopeful she will be moved out of the PCICU tomorrow!

Surgery is complete!

Kora is now in her PCICU room. She is currently on a ventilator which is providing her oxygen. The surgery had one minor complication....

Surgery day is here!

A short update! We had our Pre-op appointment today (March 21). Kora did great and has been given the green light for surgery first thing...

Surgery date!

We have officially received our surgery date! We will be heading to Edmonton next weekend (March 18 or 19th) and surgery will be taking...

First procedure and surgery update

Kora had her first procedure on January 4th. We stayed the night before at the Ronald McDonald House in Winnipeg so that we didn't have...

Planning for surgery

It's hard to put into words if Kora is doing well or not. She is really struggling with weight gain and only gaining less than 50 grams a...

Kora's Diagnosis

Kora was brought down to the NICU shortly after she was born so they could get a proper picture of what was really going on with her...

Kora's Birth Story

I'll start this off by saying, I am by no means an expert writer so I apologize for any inncorect grammer used! In August 2020 we gave...

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HELLO

Who am I?

I am Kora's mom, Shae! I started Kora's Heart Journey with the goal of having an accessible place for those who have been following our story to stay up to date on the ups and downs of our journey.  

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